of third legs, mental gymnastics and more

My Story
Secrets to Successful
Coping Skills
Quotes, Poetry and Stories
That Resonated
A Few Words
on Pain
Books That Helped
Me Grow
Wings Of Hope

me in the new wheelchair

Other Myo Sites

Myositis Association

IBM Page


JH Myositis Center

The Hospital for Special Surgery in New York
myositis section

The Muscular Dystrophy Association

Life! disabled

Bill Tillier

Roly Clulow's Survive Myositis Site

Wheel Chair Junkie

Power Chair Diaries


Happy Spring!
My 2015 update is here!.

We also want to make sure you know about Team Sully's Walk for Myositis. It's happening June 13, 2015 at the Cape Cod Canal. We hope many of you local folks will be able to attend and support our cause!

You can also see my updates from previous years by clicking on the
2014,     2013,     2012,     2011,     2010,     2009,     2008    updates...

...or, to start from the very beginning, click on: My Story.

Having IBM (Inclusion Body Myositis) means coming to grips with a constantly changing life. The perpetual curtailment of activities requires that you rise above the plight. You need to constantly reinvent yourself in order to adapt to yet another limitation and, at the same time, acknowledge the grieving process that comes with these changes.

It means learning to let go and yet go on with your life.

Comments are welcome! Please feel free to email me your thoughts at (The user name is myomusings).

Locations of visitors to this page

© 2007-2015: Dagmar Slaven. All rights reserved.